Plagio Saurus

One of the most helpful things I have found since we started this adventure in correcting Violet's head shape has been reading other parents' blogs about their experiences. I am hoping that when it is all said and done, our story can help encourage another parent going through this ordeal.

We had our first appointment with Cranial Tech in Charlotte last Tuesday and it went well. It was a long day and a bit overwhelming, but I'm glad we're on the right road. I was happy and blessed to have a friend who was willing to ride with me. Glenna was great company and Her GPS was a great help too!

Right now we are waiting for the preauthorization from our insurance so, we can go back to charlotte and get V fitted for her DOC band. After she's fitted, it will be 10-14 days before her band is made and shipped. The therapist we saw Tuesday told us she would likely need a second Band, but she also said that would be a decision left completely up to us. I asked how long one would last and she said each band allows for 1 1/2 to 2 cms of growth and at Violet's age, that would probably be around 2 1/2 months, give or take a few weeks. At that point, we would need to decide if we were happy with the results from one or if we wanted to continue her treatment. The biggest holdup I could see us having is financially. We are going to be paying cranial tech $2,000 when we go to pick up her band and then, anything that insurance covers will be reimbursed directly to us.

I've decided to have custom stickers made and am very excited. I met a very sweet woman from Arizona online who has her own business making vinyl decals. Her daughter had plagiocephaly too and she has made and sold custom vinyl decals to other parents. Her website is www.blingyourband.blogspot.com. Take a look! The stickers are awesome and have had great reviews. I decided this was the best way to go. I love the way the bands look painted, but from what I understand, it is a lot of upkeep because the paint chips. These stickers are pretty and durable so, I think this is a better avenue than just going to hobby lobby. And since Violet will be in her band 23 hours a day, we want it to be as stylin as possible!

So, that's where we are now. As soon as we here from BCBS we'll make our next appointment with Cranial Tech and I'll have more to share!